Very Quick Update
I think the closest set of symptoms that describes what I’m experiencing is “POTS” (Postural orthostatic tachycardia syndrome)
I’m not married to it but it describes most of my symptoms.
- Cannot stand up unsupported more than 10 minutes
- Exhausted by trivial things like walking to the top of the stairs. I can do it but I need good motivation.
- When getting upstairs in the evening I get overwhelmed with the most terrifying level of fatigue I’ve ever felt. It’s terrifying because it really isn’t fatigue, it’s sleepiness. I’ve been skipping bedtime rituals so I can just get in bed & get horizontal.
- I also just drop out of conversations when I’m in my chair, and just start sleeping
There is nothing definitive about this but “POTS” is what I’m getting when I combine these symptoms, at like over 98% in the first pages, any browser, any search engine.
I’ll let you know what happens as it does…or that is, after I wake up again.
UPDATE: I got admitted his afternoon. at 6pm. In my room now. Many tests to do. G.night all!!!
July 14, 2021 @ 2:09 pm
Love your diary. Some of it is pretty scary. But I’m on your side and thankful you have melissa by your side. Xxoo
July 14, 2021 @ 3:36 pm
UPDATE! We’re goin’ to the hospital in an hour of so.