Anyone who says that us chronic disease “experiencers” (I refuse to call myself a “victim”) are lazy and “have it easy” certainly does not know what is involved. There is real work involved, work that we normally see as trivial.
Gaining weight is one of my major goals right now because I’m down 116 lbs, down from 123 lbs a month ago. That sounds so easy, especially to someone like me who used to struggle like crazy just to keep my weight below 220 lbs. I didn’t anticipate all the ways a body has to interfere with the natural instinct of grabbing the yummy stuff and stuffing my mouth. A simple thing like nausea that won’t go away is what is making this weight loss so tough. Not only that but once a cancer patient passes a certain level of cachexia, food starts tasting weird too. I don’t even need to be getting chemo with this any more, it just will not go away.
So there’s also a constant need to go out and walk, get moderate to light focused exercises. For now those are exercises given to me by my physical therapist. I’ve got to do this for so many reasons I’m lost count. Like reason #1 is that I am not ready to die yet.
When you add up all the time I spend doing this it get up into multiple hours every day. Now let’s add in bathroom time, need for extra sleep, oh and how about all those dry heaving episodes? At least 2-3 per day now.
What about the “stuff” I allude to in the headline? I’m having pretty good success in this. The principle is that I’ve had a lot of activities that have required stuff to support them, and since I won’t be doing those activities I won’t need the stuff, so the stuff should go to people who can use the stuff. I do this rather than just hold onto it all for the survivors to sort out.
I just gave my motorcycle away to a friend of mine in Vancouver, BC. He’s been riding for years and has fallen in with a bunch of good bike mechanics. If I were to sell the bike I’d get around $4000 for it. I could use the money but I want that bike to deliver thousands more miles of wild fun. Sean can afford to either buy a bike or fix something like the ol’ Devil Duck. You can imagine the look on his face when asked of he wants a Ducati in very good condition! He left last Saturday with it in his pickup, along with a box of manuals and parts old & new.Now he’s been sending me pictures of it on a repair stand since the first thing that needs doing is new timing belts and a battery. I imagine I’ll be receiving something like a travelog over this summer too.
We’ve sold off a bevvy of other no longer useful things; a lawnmower that was too big for our yard, the last of the 2 huge dog crates that we got for Ernest & Baxter, and now we’re in the process of getting my fancy, excellent bicycle ready for sale out of a bike shop that a friend of mine owns in Portland. He likes selling the occasional top of the market bike along with the main stream of reconditioned bikes that he sells. My bike is a collector’s item. Really, that’s what Tomcat (my friend) tells me and he’s both professionally deep into the bicycle industry, and he could even sell it off for parts and we’d both make some nice dough, at least enough to recoup the money for gas between here & Portland.
I wonder who would want an underground comix collection from the 1960s through the early 1980s? Dunno, but it’s all cataloged & ready to go. Same with all those little Matchbox toy cars and trucks. Oh yeah, and all the fully loaded backpack that I used for several 5 day outings, plus the ultralight pots & pans, water treatment stuff, & cook stove. Craig’s list and it gives me something to do.
OK, now it’s time for me to take a walk.