It’s 7:45 Thursday morning and I’m receiving a pint of whole blood. My Blood pressured has been slowly going down. I never recall numbers this low. My temperature fist thing, was at 99,7 but some tylenal took it back down to normal. I’m having some kind of procedure at 8am, A full look at the […]
I think the closest set of symptoms that describes what I’m experiencing is “POTS” (Postural orthostatic tachycardia syndrome) I’m not married to it but it describes most of my symptoms. Cannot stand up unsupported more than 10 minutes Exhausted by trivial things like walking to the top of the stairs. I can do it but […]
This has bee a heck of a month. I went into it strongly. Normal stuff like getting new tires for the LEAF. Then around each chemo infusion that have been getting weirdly worse. I am so grateful that the painters knew about 80% of the little color distribution we wanted, and we were fine steering […]
Sorry about the delays updating here. I’ve had 2 more infusions since writing here, so at least a month of silence. Well, aren’t you glad that you can sign up to get a brief email message whenever I post something new? After the 2nd infusion on June 8, I started having real digestive issues. I […]
I can’t believe it but this is the first time I’ve ever wanted a chemo infusion and have been delighted with the immediate results. The last month I think I’ve been feeling the effect of the cancer on me directly. Up until last week I never actually felt the cancer. I only felt the treatments. […]
I had my consultation with my oncologist this Monday and I’ve put off posting about it until now. No real surprise. It’s cancer again. The same kind as always so at least there’s been no obvious mutations on that mutation. We did manage to get enough meat with this biopsy that we can send some […]
I had a “CT guided retroperitoneal biopsy” on Tuesday to try and get a handle on what is going on in my gut. As the doctor who was doing it told me, when consulting with my oncologist they could see “streaks” of bio-active areas in my PET scan which are suspicious so they correlated their […]
Well, I have so much scar tissue down where my pancreas used to be that the doc running the endoscope couldn’t get a good biopsy. That plus a very vague PET scan result means we’re gonna have to fly blind from this point on … at least until a new tumor shows up big enough […]
Had my PET scan yesterday. Blood test showed another rise in my CA19-9 counter but not as steep as the last rise. The scan imaging showed a small glucose uptake going on at the former site of my pancreas, just where I had all that radiation aimed last year. At least it appears that my […]
I’m writing this at 1 am. I went to bed at 7 pm. Now my back hurts enough to keep me from sleeping yet again. I think this has been going on in some way since January. I can’t recall a full night’s uninterrupted sleep since then. I had been thinking it was only due […]
